In a study of 12 adults with primary immunodeficiency and gastrointestinal distress, in-depth interviews were used to explore their experiences and the actions they take to relieve GI distress. There are complex psychosocial aspects of living with primary immunodeficiency and gastrointestinal distress. Participants reported that GI distress is challenging in daily life and felt the need to cope without adequate health care services. Participants used various coping strategies, with an underlying search for normalcy.
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