The Primary Immunodeficiency Content Hub Channel
Erica Billy discusses her experience caring for her daughter who has severe combined immunodeficiency (SCID). Ava had a fever at birth, which was their first indication that she had SCID. After a month, she had another fever, and she kept getting sick over the course of the following 5 months. Testing indicated a diagnosis of leukemia, but a second opinion resulted in the diagnosis of SCID. Ava developed GvHD following transplant, which was a struggle, but she recovered. After about 2 years, she needed another transplant and responded very well. She is now in school and thriving.