Sharon Telesford shares her journey with paroxysmal nocturnal hemoglobinuria (PNH), a rare bone marrow failure disease. Initially misdiagnosed with MDS, Sharon eventually sought specialized care, leading to the correct diagnosis of PNH. She discusses how the disease impacted her work and personal life, requiring biweekly treatments. After hesitating, she participated in a clinical trial, which significantly improved her condition by eliminating the need for blood transfusions. Sharon advises other PNH patients to stay committed to their treatment and consider exploring clinical trials as a potential option.