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ShareTheJourney Crowdsources Data for Breast Cancer Research

ShareTheJourney is an app for iPhone that analyzes issues connected to breast cancer treatment. Symptoms studied include mood changes, activity and exercise disruptions, sleep disturbances, cognitive troubles, and fatigue. Using journals and survey answers solicited from program participants, in conjunction with optional iPhone sensor-collected data, the research study aims to better understand variations in post-treatment symptoms of breast cancer survivors.

With funding from the Robert Wood Johnson Foundation, and support from prominent breast cancer non-profit organizations, ShareTheJourney hopes to find ways to improve the quality of life for women diagnosed with breast cancer. All women with an iPhone, ages 18 and up, are eligible to contribute, regardless of whether they have ever suffered from the disease.

This iPhone app leverages Apple’s recently released ResearchKit framework that accurately and securely gathers data from participants’ devices. The issue of privacy is addressed by assigning users randomized codes associated with their data so no clinician or app administrator could connect a patient with their contributions.

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For more information about the ShareTheJourney research study, click here.